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Posts Tagged ‘autism spectrum’

Not

(Thanks to Ms. CripChickBFP and Cecelia for inspiration)

A history of hate
Pain
running through veins,
etched in the tenderest parts
of the soul
is not a spectator sport.
No.

Hate is
not
oil
and love is
not
water.

A body
a woman
is not your stereo
your car
your booze
She does not need your
care
because she is not
yours.

A man
a boy
are not paintings
to tear apart
because you don’t like
the pictures of
you.

Anger is not
water
filling up all the space
it can.
That’s
why
I am
laughing
even when
I’m hurt
and pissed
off.

I’ve been angry at you,
am still angry at you,
and though you found
“assertive”
in a dictionary
I’ve never seen,
you make
me smile
today.

Justice
is
not
AWOL
here.

Singing
loud
and full
is not
banished.

There’s joy
and squawking
and marching
and speaking
and speaking
and speaking
and you can
not
take them
away from me.
Us.

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Over on Feministe, Bint Bintalshamsa asks:

Can we stop with the news reports calling [Elizabeth Edwards’s] cancer ‘terminal’? Please? Yes, she does have cancer, but it isn’t terminal. It’s incurable. There’s a helluva difference between the two.

Some commenters argued that calling Edwards’s cancer “terminal” was correct according to various legal and medical definitions. Which prompted Bint to ask this incredibly awesome question: “Why is it those who do not have the condition are considered the experts on how it should be viewed?”

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[Written on an e-mail list in response to a parent who asked about independence. Functioning labels were brought up.]

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Recently, abfh posted about the potential problems of using the word “meltdown” to describe responses to sensory overload:

Instead of using such negative and inaccurate language to describe our own behaviors and those of our children…we should take a proactive and non-stigmatizing approach and recognize that these problems are situational, rather than specifically autistic. When stress becomes a problem, we should consider what changes to our environment would help to reduce our stress. And—last but not least—from now on, let’s reserve the word “meltdown” for circumstances where its use is more appropriate.

Such as, for instance, Chernobyl.

As I said in the comments, I didn’t really understand what a “meltdown” is. I knew they had to do with sensory overload and weren’t voluntary, and had read descriptions of how they looked to other people. I get particularly confused when meltdowns are contrasted with temper tantrums. And this confusion, I’ve realized, is because “temper tantrum” in my mind means a very specific thing. (more…)

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hair.jpg

[Image Description: A faceless person with brown hair parted cleanly down the middle. The back of the office chair she’s sitting in is visible, and behind her you can see a white wall and a wooden door flung open with a plastic bag on the doorknob. In the lower left corner, you can see some pink shoes.]

A friend once told me that my disability was “semi-visible.” At the time, I thought I knew what she meant. Now I realize I don’t.

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(Originally written August 11, 2006)

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And He Who Walks Behind the Rows did say, “I will send Outlanders amongst you…and these Outlanders will be unbelievers and profaners of the holy.”
–Isaac (John Franklin), Children of the Corn

All right, go ahead and sacrifice me to your respective vegetable-god. I like Children of the Corn.

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